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Padma Lakshmi, Susan Sarandon, Halsey, Whoopi Goldberg, Dolly Parton are only some of the celebrities struggling with endometriosis. Over the years I have read many of their confessions regarding this disease and after I went through two major surgeries for severe endometriosis I couldn’t help myself from wondering “Why on earth no one abroad is talking about the four stages of endometriosis and the forms it can take, nodules included?!”

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Don’t get me wrong! It’s good people are starting to talk! To do something! To organize events, but let’s face it! Let’s say it clear!

ENDOMETRIOSIS IS NOT ONLY ABOUT SOME OVARIAN CYSTS, PAIN DURING MENSTRUATION AND INFERTILITY!!!!

No! You will see below the four stages of endometriosis (with bibliography and resources included, of course) and, in my opinion, one of the most severe forms of endometriosis: the rectovaginal endometriosic nodule that can form on the colon, in the region between rectum and vagina etc.

If you are under the care of an endometriosis specialist, your doctor should know that!

Therefore, here are the characteristics of the four stages of endometriosis:

STAGE  I

Stage I means minimal lesions or inflammation on or around organs in the pelvic area.

STAGE II

The lesions, the inflammations or the endometriosic areas are a little more pronounced than at the stage I, but the organs’ damage is still fairly restricted. There are not too many adhesions or endometriosis injuries.

READ ALSO "BOWEL ENDOMETRIOSIS - WHAT ARE THE SYMPTOMS"

 STAGE III

The endometriosic lesions are more extensive. The tissue begins to infiltrate organs in the pelvic region, including the abdominal wall. There may be important endometriosic adhesions or scars.

STAGE IV

The disease actively infiltrates more areas in the pelvic areas, ovaries and other organs from the extra pelvic region. The nodules or adhesions lead to distortions in patient anatomy and other more serious complications.

My experience

When I reached the second doctor who operated me, dr. Voicu Simedrea, from Timisoara, Romania, I was diagnosed with stage IV due to my 4.5 cm recto vaginal nodule. Endometriosis on the intestine, colon, rectum, vagina, bladder is not something uncommon.

Yet, almost no one is talking about it. At least no one from all those celebrities and very few on the groups I follow on Facebook.

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Girls, you should ask your doctors about those stages, about nodules and these complications. When you have such thing, the doctors should form a team with doctors of different specialties because the surgery could imply a bowel resection too. I have this: 10 cm of my colon cut. It was neither easy, nor difficult, but it’s important I had a fair diagnosis and a fair treatment. This is how I managed well my endometriosis plus with supplements, diet, yoga etc, even if the birth control pills and those hormonal plans didn’t work for me.

Resources:

www.nzendo.org.nz/about-endometriosis

https://endometriosisnews.com/2017/09/26/the-4-stages-of-endometriosis/?utm_source=END+E-mail+List&utm_campaign=419e6b11ce-RSS_THURSDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_5a9732e593-419e6b11ce-72319117

https://www.researchgate.net/profile/Peter_Oppelt/publication/232811196_Preoperative_planning_of_surgery_for_deeply_infiltrating_endometriosis_using_the_ENZIAN_classification/links/0fcfd509bf3871af01000000/Preoperative-planning-of-surgery-for-deeply-infiltrating-endometriosis-using-the-ENZIAN-classification.pdf

https://www.ncbi.nlm.nih.gov/pubmed/?term=nodule+endometriosis

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